Several times in the last few months, our boy has mentioned that he seems different from other kids his age. He feels they think in a different way than he does.
He isn’t wrong, since he’s on the Autism spectrum. If the DSM-V hadn’t changed everything (okay, not everything), he would be diagnosed as having Asperger’s. In fact, his earliest diagnosis listed him as an Aspie.
We have never told him, concerned that it might make him feel different, or that he might use it as an excuse. “Well, I just act that way because I have Autism.”
However, since he already feels “different,” we’ve been thinking that maybe we should tell him.
A couple weeks ago, the kids and I were watching Girl Meets World, a spinoff/sequel to my childhood favorite, Boy Meets World. In this particular episode, one of the characters had testing because the adults in his life suspected he might be on the spectrum. He was agitated and concerned over the idea that he might be Autistic. I didn’t really like the way they portrayed that part because the tone made a diagnosis sound a little scary. Test results showed the young man does not have Asperger’s and he seemed relieved. However, one of his close friends was disappointed because she is an Aspie and was hoping his diagnosis would make her feel less different. The show ended as the kids assured the girl that they all love her just the way she is.
Overall, the episode does a pretty good job of showing kids how to be inclusive. The portrayal of nervous tension about the testing, both for the parents and for the child, seems fairly accurate.
I wouldn’t really know, because we didn’t tell our boy we were getting him tested (yearly psychs are run of the mill here, so he didn’t even notice) and I was ECSTATIC to receive the diagnosis.
Still, I felt they could have done a better job of portraying the diagnosis as something less scary—or even cool, because truly, Spectrum Kids are gifted.
As the show closed, our boy stared me square in the eye and asked,
What do I have?
Not quite ready to have the conversation, I hedged. “What do you think you have?”
He thought for a minute, then said, “I think I have the illness of aaaaaaaaaaaa(thought he was going to say it)aaaaawesome!”
Today, I opened our son’s door to find a winter wonderland.
He’s been more impulsive of late; we aren’t sure yet what’s going on.
Last night at Boy Scouts, his sometimes-nemesis-sometimes-partner-in-crime asked for water. Our boy complied with the request by dumping water on the kid’s head.
When Hubby asked him why he thought it was a good idea, he shrugged.
I didn’t think it was a good idea. I just thought of it, so I did it.
Reasons for his choices remain elusive, apparently even to him.
“I wanted to do it at the time but now I see it was a bad choice,” or “I don’t know why I did it,” are frequent answers when we question him after the fact.
His befuddlement appears legitimate.
Since Dad passed away, wild swings of his behavior have become the norm. One moment, he’s explaining detailed reasons for the failure of a World War II campaign. The next, he’s walking from the kitchen to the living room to deposit orange peels behind the couch because the trash can (in the kitchen) was too far away.
After he gets in trouble, he’s almost perfect for hours and incredibly logical about accepting consequences for his behavior. He’ll work with diligent focus on math, chores, apology notes or other remedial requirements.
If only he’d act as though he’d been in trouble BEFORE getting in trouble, he’d almost never be in trouble.
Back to the beautiful snowy landscape.
In his room.
I opened the bedroom door to deposit some of his belongings and stopped, sniffing in amazement.
My young man’s bedroom actually smelled…not like his bedroom usually
Then I turned on the light.
The pictures don’t even begin to accurately portray the amount of powder on EVERY SURFACE of his room.
This summer, before Scout camp, I bought him a container of Anti Monkey Butt powder (yes, it’s really a thing) as recommended by the troop leaders. It resided in the top drawer of his dresser for almost an entire year.
This morning, it called his name.
He said he just wanted to see what everything would look like with powder all over it.
Thought it might be pretty.
Turns out, it definitely smelled pretty.
It was EVERYwhere.
I can imagine his delight as the plastic can puffed white flakes into the air. He probably danced through the clouds as they fell (a theory supported by the powder Hubby brushed off the kid’s shirt this morning).
As usual, he attempted no argument when I handed down the sentence: vacuum and wipe every surface, shake bedding over the porch rail, put all belongings in their proper places.
He even put the sheets back on his bed without asking me for help—and I didn’t even tell him to do that.
Tomorrow, his in-home counselor will help us try to work with him through his thought process. I’m just hoping we can find a solution, because right now it feels like every time we turn around it’s “something else.”
So far, most of his urges have led to largely harmless actions, but we just never know what he’s going to do next.
It’s like he’s suddenly five. Or maybe three.
He carries chunks of concrete into the bathroom, hides yogurt wrappers and banana peels in his room (doubly odd since we reinforce that he can have healthy food any time he wants it), climbs things, wanders off, misbehaves at school hoping for a suspension (because then he can come home) and basically does whatever pops into his head.
A friend told me that when his spectrum son edged into puberty, his Autism went from minor inconvenience to a full-blown life-alteration. We’re not sure if this regression is due to the Autism, due to the grief, due to a need for a change in medication, or…
We just don’t know. And it’s frustrating.
But, on the bright side—the side to which I cling in desperation—the pattern of the powder was very pretty.
And even better: his room no longer smells like a baboon’s derriere.
Photo by Peter Nijenhuis
**We’re up to $35; see below!
We’ve all seen (and occasionally participated in) a Meet & Greet post. You know, “drop your link in the comments and maybe someone will click.”
Instead of posting a hit-or-miss link, let’s change it up. Your mission, should you choose to accept it:
1. Describe your blog in nine words or less.
2. Paste a link to a post you’re proud of writing. Bonus points for adoption, mental health or parenting themes*, but it can be anything.
*With your link, please note the post theme, e.g., “Adoption,” “Mental Health,” “Parenting,” “My Happy Place,” “Honey Badgers are Misunderstood,” etc.
3. Reblog this to increase the number of participants. For every comment below, I’ll donate a dollar* to Compassion International, a fabulous organization committed to child development and rescuing kids from poverty.
*If the comment number rises beyond my ability to personally donate, I commit to raising the money.
4. Click at least two links and read the posts.
Have fun! And ignore the lemur. Feel free to hug.
Once again, Wendy’s and the super-fabulous Dave Thomas Foundation for Adoption are raising money to help kids stuck in foster care.
Grab a drink, show some heart (with your hand!) and post a pic tagged with #share4adoption. Wendy’s will donate five bucks every time. SWEET.
So, I bought a huge box of chalk and let the kids loose on the concrete.
She created hopscotch and flowers.
Here’s his enchanting contribution to our parking area:
I noticed an arrow which led to his masterpiece. I followed it around the nose of my vehicle to the passenger side. There I found a note in chalk.
“This is what your boy does when no one is watching.”
He probably just meant, “I draw pictures,” but paired with the thing under my tire…we might hold out on that driver’s license….
Tell us your creepy kid story!
Five years ago today was also a Wednesday.
I remember that Wednesday, sharp and clear as a photograph.
I remember the warm, golden sunlight of a late Autumn afternoon streaming through the leaves, pulling them from the branches.
I remember the soft, caressing breeze teasing through my hair, wrapping through and past our little group.
I remember the strong hug as my friend, also a foster mom, dropped the kids at our back door.
I remember her fierce whisper. “You’re going to be a GREAT mom.”
I remember the tears stinging my eyes and the concerned little faces gazing up at me.
“Why are you crying?”
“Are you sad?”
It was their first introduction to what we call “happy tears.”
I remember the incessant chatter, the celebration of having “my own room in my favorite color” and the wonder of suddenly being “the four of us.”
My memories are colored by everything I knew in my heart to be true. From the moment we met, they belonged to us. I harbored no doubt.
Funny, how shared memories of the same instant can be so different.
In their perception, we were just another foster home. The seventh, to be exact, in just over two years. To them, we were nothing more than adults who would eventually give up and request their removal. A couple of unknown aliens.
My friend provided respite care for them twice and was kind enough to let us spend time with the kids, knowing we were in process with social services. The children were unaware but every time they saw us before our placement, they begged us to come let them live with us, especially after visiting our home. Looking back, I see all the signs of attachment deficiency. At the time, we thought it was a sign.
Meant to be.
In reality, they were desperate to find somewhere, anywhere other than their current foster home with the ten-year-old monster who threatened to kill them in their sleep.
Their attachment was so disrupted, they’d have willingly followed anyone who offered them cupcakes or soda.
Today, on the way to an appointment (car rides are the best discussion times), we reminisced. The children remembered the terror. The confusion. The adaptation to an unknown environment and new adult caregivers.
“I kept screaming because everything was new and it all hurt. Even taking a shower. That’s why I liked baths. I’m used to the shower now.” My daughter stated this with nonchalance. Old news, the months of screaming.
I cringed and gritted my teeth, thanking God we never have to endure that again.
“I don’t know why he screamed all the time,” she said, with a preteen eye-roll she’s beginning to perfect. “I only screamed when I didn’t want to do something. He just screamed for hours. For no reason.”
Her description was accurate.
I waited for his verbal retaliation. None came. I wished for the millionth time that science fiction memory-wipes were real. That we could erase the trauma.
“Can we go ride roller coasters again next summer?” His incongruous question signaled he’d had enough.
She wasn’t done.
“We had a lot of bad people before we came to you. I think today is something to celebrate.”
I agreed, and at the mention of celebrating, he rejoined the conversation.
“Can we get pizza?”
If you like, read a more detailed description of our first day, written two years ago. The napkin bit is sort of gross…sorry.