Related to: Put on Your Armor, Part 1 and Part 2
Several times, now, I’ve “diagnosed” our children in the face of therapists who disagree…only to have a psychological evaluation support my assertion six months (or more) later.
This is not because I’m more intelligent or have higher qualifications.
I don’t point this out to brag.
There is a reason it happened:
NO ONE can be an expert on EVERYTHING.
Every therapist has specialties.
If you’ve been part of the Hypervigilant community for more than a year, you may have wondered why I sometimes write yet another “we have a diagnosis!” post. Since he came to live with us, I’ve asserted our boy is on the Autism spectrum. And every time a professional confirms Autism, a different therapist disagrees the following year.
Some people don’t want their kids “labeled,” but in our case, what I call a diagnosis-in-writing helps us obtain needed services. (A number of therapists agree, “yes, I see those traits, but I’m not ready to put the diagnosis in writing”)
In search of someone who could finally help him, we bounced through the counseling community for six years. When the yearly psych came due, his counselor du jour completed the process.
At the time, utilizing the counselor most familiar with his current behaviors seemed logical, but not all of them were adept. In some cases, he refused to complete questions or gave answers he thought they wanted to hear.
His fluctuations in participation, combined with the wide array of specific spheres of knowledge, created anomalies in his diagnoses.
In January, a psychologist at the residential center completed a psychological for our son. Her field of expertise is ADHD. Almost all of her recommendations centered around mitigating ADHD symptoms. She did not address any of our concerns about Autism, ODD or social behavior, nor did she delve into factors impacting his aggression level.
I requested (okay, demanded) the center pay for a new psych evaluation with a different individual (since insurance wouldn’t pay for another). They declined to provide a full workup but agreed to a specialist performing certain specific testing.
Here’s what I never realized until now: we needed a TESTING expert.
The individual who performed the second battery does not provide counseling, therapy or psychological services of any kind. He only handles TESTING.
Our son’s session with the tester ended up fielding even better results than I’d hoped and I learned a valuable lesson in the process:
For therapy, turn to a licensed therapist or counselor. For medication, seek a psychiatrist. For accurate test results, consult a testing specialist.
But I digress. My point here is that no professional will ever have full command of every possible issue. Have you seen the DSM-V? It’s a chunky little book. And some of the diagnoses it contains are the sole focus of entire Ph.D. degrees.
When it comes to the kids in our homes, it is OUR responsibility to be the expert.
Children who’ve experienced trauma are each unique, but parallels appear in symptoms and behaviors across the group.
Unless your counselor is well-versed in results of a traumatic beginning, you will likely be your child’s best advocate.
If you live with a child, you know the child better than the “professional” ever could.
Don’t allow fear of being wrong or less qualified stop you from speaking up about concerns.
The most important part of being a child’s advocate is preparation. We need to put in the time to learn and to research.
With this in mind, in the next few weeks I’ll be posting resources to help kids who’ve had tough beginnings.
2 Timothy 3:16-17 encourages study of the Bible, so that we can be “thoroughly equipped for every good work.” While not specific to kids who’ve experienced trauma, it’s a great resource for finding hope and fighting fear, both integral to healing.
The idea also applies to studying on behalf of our kids. The more we know about needs and behaviors related to trauma, the better equipped we are to help them and to fight for them.
Let’s get out there and do GOOD WORK.
Know why Jesus would be great at blogging?
If you correctly guess the answer, I’ll write a post involving your blog. 🙂
Hint: he’s got lots of what every blogger wants!
Angela Duckworth, author of Grit, believes we reach “expert” level by practicing our craft for at least 10,000 hours; K. Anders Ericksson specifies those hours are spent in “deliberate practice.”
Therefore, I would like to announce that
I am an expert.
For at least thirty years, I have deliberately practiced…procrastination.
Don’t even have to try anymore; Hubby agrees my practical level of procrastination is unbelievable—even mind blowing.
Blog procrastination happens when I know it’s time to write but I’d rather pretend nothing is happening.
Writing about the last six months is painful, terrifying, discouraging.
I’ve been procrastinating.
As I mentioned earlier, the roller coaster with our girl has morphed into a super-fun ride most days. (And yes, I know that super-fun is technically not a word.)
The roller coaster ride with our boy…not so much.
Right now, his roller coaster is excruciating.
When we began our journey, people supported us in the best ways they knew. However, few had the experience to understand, so we stopped trying to share our angst, because conversations went something like this:
Me: “Our foster son won’t stop screaming. Anything sets him off. He won’t let me touch him until he’s out of his mind—then, still screaming, he clings to me like the earth is falling away and I’m the last thing standing. Sometimes it lasts for hours; I don’t know what to do.”
Friends my age: “Yeah, my kid does that, too. I just turn on the TV and he settles down,” or “Put him in his room, tell him he can come out when he’s done, and shut the door.”
Friend my mom’s age: “Tell him if he doesn’t stop crying, you’ll GIVE him something to cry about.”
Friend my grandmother’s age: “He probably has gas. Have you taken him to the doctor?”
Social worker: “If he’s too much for you, we’ll find another placement.”
The above suggestions didn’t help.
But those kinds of conversations prompted me to start this blog, because Hubby and I agreed no one should feel as alone as we did.
Have a troubled kid? You are not alone.
Terrified of the future? Wondering whether your child will have the ability to function in society? “Cautious optimism” is your motto?
You’ve come to the right place.
Everyone’s story line is a little different, but the internal conflict connects across all boundaries: parents want beautiful life to happen for their kids, but we don’t always know how to best assist.
We want them to thrive, be mentally healthy and happy, be successful, have a great future.
Three months ago, the main life plan for our eleven year-old son was
His roller coaster almost went off the tracks in August. The happy boy who lived with us during the summer of 2016 was long gone. He used his intelligence to charm and manipulate adults but could not stand his peers. Aggressive behavior caused his expulsion from two summer camps.
Several life alterations (loss of Hubby’s dad, job changes, selling our home, moving) or hormones may have something to do with the downward spiral that held a tenacious grip on his personality; we don’t really know the cause. Hindsight sometimes holds clues and answers, but in this case, we can’t find any triggers.
I once read that talking about suicide is “just” a cry for attention unless the person has a plan. (We can discuss “just” another time…if a person is reaching out, there’s a reason.)
Our son had a plan.
Several plans, actually.
When he was upset, I often sent him to write in his journal; after he finished, he allowed me to read it and we took time to discuss his thought processes. As he found that I would not give him a consequence for anything he wrote (he tested this with a list of swear words), his writing became darker and included plans to run away or harm himself.
His list of ways to die included throwing himself in front of a vehicle, drowning himself in the pond or stabbing himself in the heart with a pencil.
Because of his extreme behaviors and inability to function appropriately in most settings, he had an in-home counselor ten hours a week. She became an invaluable presence in our family, mostly for me. (I no longer had to wonder whether I might be overreacting.)
We monitored him closely, working with the in-home counselor with the goal of keeping him with us.
We were, in a word, Hypervigilant.
We installed an alarm on the house to alert us if he tried to leave in the middle of the night, and cameras so I could keep an eye on him when I had to be in another room. Most of the time, I slept only when he slept, woke before he did and kept him in my physical sight almost all day. If I needed to use the restroom, I took the monitor, and only took showers when another adult was in the house. Hubby took over when he got home from work so I could get a little rest.
We were exhausted but determined to do everything we could to prevent residential care.
We believed our love could be enough.
Our in-home counselor agreed he needed immediate and urgent help after he acted out a detailed suicide scene in front of a camera in our home. We aren’t sure whether he chose the setting intending a manipulation, since he knew the camera was there. Regardless, the underlying issue remains the same: his thoughts were focused on ending his life.
As I explained that we might need to seek help from a facility outside our home, he shrugged.
“You’ve done all you can. You’ve tried everything else. We might as well try this.”
We checked him into an acute care psychiatric facility that afternoon. We visited every chance possible and each time he fed us lies (people hurting him, taking his shoes, trying to fight him). After a visit on day 5, Hubby and I resigned ourselves to the knowledge he’d be there a while as his mindset was obviously not changing.
Less than 24 hours later, a nurse called and told me they planned discharge that day. I was shocked.
“He told the doctor he’s not thinking about suicide anymore, so he can come home now,” she chirped.
I asked to speak to the managing director, who told me they could only keep the child if the child continued to want to hurt himself or someone else. Since our boy knew the right words, he had to come home.
The next day, as I painted a closet, I glanced at the monitor to see him trying to shove a pencil through his ribs.
If you haven’t read Grit by Angela Duckworth, be forewarned and encouraged: the book is long AND it is worth your time. The information is enthralling. Listening to the audio (read by the author) is even more fascinating.
One of my colleagues suggested I read it after I related the latest escapades in our quest to find the best care for our children’s special needs. Grit, according to Angela, is “perseverance and passion for long-term goals.”
When it comes to our adopted kiddos, any social worker, community service board member, child services team contributor, school administrator, teacher or member of the mental health community with whom I’ve interacted would agree that I tend toward dogged advocacy. Our first social worker told Hubby I’m “hypervigilant” (hence the blog name).
Their well-being is my Quest, if you will.
Our kids had such a traumatic start; Hubby and I are determined—as much as is within our power—to make the rest of their growing-up years decidedly un-traumatic. I have to tell you: spending almost every moment of my wake time (and sometimes my dreams as well) finding ways to sow seeds of future success is exhausting.
At my friend’s recommendation, I read Grit thinking it might give me some encouragement.
Perhaps some validation.
Maybe even a little focus.
What I didn’t expect: Angela talks about ways to develop Grit in our children.
Her explanation of Grit indicators enthralled me. Among other things, a huge predictor of future success is a child’s commitment to a challenging activity for a certain amount of time.
At the high school level, two years of involvement in the same activity (whether sport, club or organization) is a solid predictor of future success.
Chess club, lacrosse, football, student government, school newspaper: as long as the activity creates growth and challenges the child to learn more, improve or think more creatively, it counts. (One year of involvement predicted nothing, by the way. That second year matters.)
To grow Grit in their children (and themselves), Angela, her husband and her children all “Do Hard Things.” (As a nerd partial to ancient myth, I prefer the term”Grit Quest.” My paraphrase of quest: an adventurous search or pursuit to secure or achieve something. GQ for short. Gives more of a sense of the “bulldog determination to scale the highest limit of this mountain” ideology our family tends to embrace.)
1. Everyone does SOMEthing that requires practice (pursuit) to improve. Each family member must embrace a GQ.
“Everyone” includes parents—how can we expect the kids to do something difficult while we potato on the couch?
If you’ve followed this blog for long, you know that Hubby and I do fun things like teaching ourselves how to knock out and rebuild walls, replace the bathroom ceiling and restore cars. The kids’ counselor actually told us we needed to take time to relax, to show the kids that adulting isn’t all work. #1 will be no trouble.
2. Everyone chooses his or her own GQ. No one wants to work hard because someone else is making them.
We have a child who would prefer to do nothing at all, so #2 will be more difficult.. If we don’t choose something for her, she will sit in her room and converse with herself. We’ve come to a compromise: there will be a GQ and it will involve music; the kids can choose from the instruments we already have on hand (piano and guitar). They’ve each asked for music lessons (unwitting of the work required), so this technically follows Angela’s guideline.
Other GQ considerations are transportation and impact on family time. For instance, we’ve ruled out football (American) for now because practices every night and games on weekends would effectively preclude any other activities…for anyone, player or not. We’re open to any sports which enable the kids to play together without taking over the family schedule.
3. No quitting. At least, not on a difficult day nor due to bad attitude. Predetermine a timeline or stopping point.
Once they’ve fulfilled the terms of the agreement (e.g., eight weeks,”when you reach x level” or a sport season) they can pick a new instrument or try something else.
Angela Duckworth says, “if I’ve paid the tuition for your set of piano lessons, you’re going to take all those lessons and you are, as you promised your teacher, going to practice for those lessons.”
Sounds great, but #3 is a bit more tricky for us, as we’re still working on motivation.
For over a year, the kids took Karate (THEIR CHOICE). We told them they could quit once they received a green belt. Most of the class attained the first belt within the first three months. Over a year later, our little darlings finally managed to pass the first belt assessment. They simply refused to practice.
No consequences mattered. Rewards, consequences, the teacher calling them out in front of the entire class…nothing mattered to them.
This lack of response to negative consequence or positive reward has been an ongoing burr under my saddle. It’s a “normal” response from trauma kids.
I literally had to stand there and watch them, directing every move. Right, it’s only fifteen minutes a day…but when it took an hour to complete thirty minutes of homework and we had Scouts (one for each) twice a week and counseling twice a week and…and…and…it just became too much.
What I learned from that experience? Pick a shorter term goal. The idea of allowing them to quit when they hit green was this: by the time they got to green, they’d be so good, they wouldn’t want to quit. Both of them have athletic physiques and our boy has flexibility any ballerina would kill for. We knew if they found success, they’d want to continue.
Problem is, they fought so hard to be complacent, they missed out. Toward the end, they both started realizing goals in karate. Unfortunately, it was too late, because they were both approved for in-home counseling (7-10 hours per week). With school, there’s currently no time for karate.
But hey, once the summer starts, we will have all kinds of time to practice an instrument. (Yep, I plan to practice as well.)
In the meantime, I’m going to go listen to Grit one more time. There was a section about the Seattle Seahawks I didn’t fully catch the first time around, and I want to listen again.
If you take time to read it (or already have), weigh in below.